rachels.haven's Journal

[rachels.haven]

Here's a buckling pic. This one makes him look really big. In reality he's barely taller than the red bucket behind him. This picture also reminds me that I want to tarp off more of the front of the "doe patio" for more of a wind break. It's cold and windy here now. A project which calls for MOAR TARPS and ROPE-two of my favorite things.

 

[Bruce]

He is pretty darn cute!

 

[rachels.haven]

Thanks!

 

[rachels.haven]

When to the rheumatologist today. My joint issue symptoms and blood work seem to only be pointing to lupus, not rheumatoid arthritis. On top of that, I'm off all medications, I got told I no longer need to be seen regularly-just if I have problems-and other than tendinitis when I do work when it's cold, I have no problems, so I'm free. Yay!

 

[Bruce]

No treatment options for Lupus?

 

[Mike CHS]

Free is good. Congratulations!

 

[rachels.haven]

Things are quiet, so no.
I don't handle the meds well, so the benefits don't out way the risks until I'm in actual pain or being damaged in some way. Plus, my immune system does not appear to be attacking itself at the moment. I think I had a bad run of time for a while, and it's ending. I'm a little uneasy about going without bloodwork. Sure be nice to see things coming and all.
Not everything is normal with the current blood work, like I still have a positive double strand dna test, but at the last blood draw everything else was oddly normal so I'm getting a break. I don't get it entirely, but for now I'm getting left alone.

I'm suspicious that last flare up may have been build up from being severely sleep deprived for 4 years straight while I dealt with the behavior issues of my eldest. I'm hoping that as long as I don't have to deal with anything of that magnitude again for a while maybe I'll be okay.

 

[Bruce]

That sort of stress can trigger/exacerbate autoimmune diseases. Hopefully the lower stress will suppress the Lupus.

 

[Senile_Texas_Aggie]

Miss @rachel,

Just found and read through your journal and am now a follower. I like the humor you have displayed in your journal. And your positive attitude toward your illness shows you have what it takes. I do hope your illness can become more manageable.

Senile Texas Aggie

 

[rachels.haven]

Thank you. I'm doing my best. And I have a very supportive husband to boot. Having a spouse with a good attitude helps my efforts to do or be anything go a lot farther.